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by **lorka150** » Thu Jun 29, 2006 5:17 pm

does anyone here have an autoimmune disease? how do you cope with the fatigue associated (with most of them)?

by **starprancer** » Sat Jul 01, 2006 3:58 am

I have a autoimmune disorder and I handle fatigue with rest mostly. Also a multi or prenatal vitamin. When I try to fight it I am miserable and probably make myself feel worse by pushing on. I hate it b/c no one seems to fully understand that I get so tired I can barely function. Except my wonderful husband!

by **lorka150** » Sat Jul 01, 2006 5:18 pm

does the resting actually help? i'm glad you have an understanding husband

by **starprancer** » Sun Jul 02, 2006 4:10 am

Yes it really does help me. Although I don't always want to rest for an hour or two. I am learning the hard way that I must get plenty of rest because of my condition. Especially at night I am up until the wee hours of the morning... not good when you have a 13 month old. Thank God I am done breastfeeding. That took a toll on me.

My husband is very sweet and understanding and insistant about me lying down.

by **lorka150** » Sun Jul 02, 2006 5:16 pm

too bad the husband can't take care of the breastfeeding!
do you mind if i ask what you have? if you do- that's okay, and i apologize for over stepping my boundaries.

by **starprancer** » Mon Jul 03, 2006 5:02 pm

Psoriatic Arthritis & Lymphocytosis

what about you?

by **lorka150** » Mon Jul 03, 2006 5:15 pm

celiac disease.

by **pe_power** » Mon Jul 03, 2006 9:28 pm

Hi Lorka -

I've been lurking around this board for awhile, and I thought I'd respond to your post...

I was dx'd with juvenile rheumatoid arthritis at age 4. Was in remission for a while, but symptoms have been moderately strong for 10 years plus (I'm 29 now).

I do get fatigued quite easily. I treat my symptoms with a combination of Rx drugs and rest. I can tell a difference in my energy levels since Enbrel was approved...it has really helped.

I hope this was the kind of info you were looking for...if not let me know

by **lorka150** » Mon Jul 03, 2006 9:29 pm

thanks for your reply. unfortunately, i cannot take medications. i just think that i posted this out of frustration. i hate trying to be so healthy, but am either sleeping/laying around all day, therefore feeling like a slug.

by **pe_power** » Mon Jul 03, 2006 9:41 pm

I completely understand where you are coming from. I sometimes become pretty frustrated with my limitations. I normally just veg on my couch all day on Saturdays from pure exhaustion from the rest of the week. You are not alone!!

If I need those times to relax, I take it and not worry about all the little things that need to be done. Having a support system helps the situation as well. But I also noticed that many people are very ignorant about auto-immune disorders and their effects.

I wish you the best - its never easy...

by **lorka150** » Mon Jul 03, 2006 9:47 pm

thank you! you too.

by **new beginnings** » Wed Jul 19, 2006 5:59 pm

I have a few ....What a pain in the ..(ehem) ..ass they are and YES fatigue is definately a factor for me. I have Rheumatoid Arthritis, Iritis,(which is where my IBS links from).. Vitilegro, I am also Hypo but not sure if it is auto or pituitory.. I really am thankful tho because since my body has decided to pick they rediculous diseases, it didn't pick MS....and it very well could have. :wink:

by **lorka150** » Wed Jul 19, 2006 6:02 pm

i have never "met" or met anyone else with iritis... that's crazy! my uncle has it - everyone in my family has one or two autoimmune diseases, so we cover 'em all.
haha. that's a joke, sorry. MS is abundant in my family... we always think that it could be worse, none of us are dying, and it's just more of a slight hinderence than anything else.

by **new beginnings** » Thu Jul 20, 2006 4:07 am

Lorka..I adopted so I have no idea if my family history involves autoimmune diseases but I just bet it does. My oldest of my 5 daughters has psorisis (sp?) and I really hope it doesn't develop into arthritis for her. It's funny I was fine till about 8 years ago & had a trauma in my life and it all started showing up.
I've never met anyone else either with iritis. I totally hate it...so damn painful and really who would think your own body would try to destroy your eye LOL..thats why its so painful..it actually trys to peel away your pupil or iris , the part that is your eye color.

by **lorka150** » Thu Jul 20, 2006 5:25 pm

yeah i feel really bad for my uncle!
i'm sorry that you are going through it, also.

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autoimmune disease and fatigue

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autoimmune disease and fatigue

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